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LINKS PAGE
GENERAL SITES
www.beyondthelimits.net Beyond the Limits of Myasthenia
Gravis by Clete Gress. It's an autobiography by Clete Gress telling of
his struggle with Myasthenia Gravis and how he learned to go Beyond the
Limits of the disease
http://www.angelfire.com/hero/heros/
We salute our heroes in the Gulf"
http://www.mgauk.org
The website of the Myasthenia Gravis Association for the UK.
http://www.myasthenia.org
The Myasthenia Gravis Foundation of America website
www.mgsouthyorks.org
Website for the myasthenic support group of South Yorkshire in England.
http://www.members.aol.com/jdjandsje2/dr_mary_walker/index.htm
Fascinating site covering the brilliant pioneering work of the Scots doctor Mary
Walker. Well documented with lots of photos. This lady pioneered MG research as
far back as the 1930's. A "MUST VISIT" site.
http://pages.prodigy.net/stanley.way/myasthenia/famous.htm
worth a visit, see that wealth and fame do not prevent you from having
Myasthenia Gravis, see some of the famous myasthenics
http://www.sleepnet.com
Sleep apnea is something suffered by many MG?ers, if you need any info, this is
the site to visit. There is even a test to give you a better idea whether you
suffer or not.
http://www.clams.org/goodocs.html
Although started by MS sufferers, this site gives list of Neuro?s in the US and
Canada which are rated good by the patients themselves. Check to see if they
treat MG?ers. A few of our members have found this site useful
http://myasthenia.puhs.org/moshe/
Moshe Pick our friend from Israel has all his surveys posted here.
http://www.niams.nih.gov/hi/topics/autoimmune/autoimmunity.htm
Everything you ever wanted to know about auto-immune diseases.
http://myasthenia.puhs.org/mgdiag.html
Great site dealing with tests and diagnosis for Myasthenia Gravis and other
Auto-immune diseases

INFORMATION & TREATMENT SITES.
http://cpmcnet.columbia.edu/dept/surgery/Cardio/myasthenia.html
CPMC Thoracic Surgery: Myasthenia Gravis
http://www.mgauk.org/mganews/thymoma.htm
Nick Willcox: Thymoma and Myasthenia Gravis
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search&DB=PubMed
Pub Med - American National Library of Medicine - Great search facility for
information about prescribed drugs.
http://pages.prodigy.net/stanley.way/myasthenia/mgtable.htm
BEST OF MYASTHENIA GRAVIS LINKS
A table containing links to cover everything from organisations world wide,
Diagnosis, MG Articles, Specific Information about treatments, Drugs used to
treat MG, Medical Information, Special Issues & lists of Worldwide Organisations
for non-English speaking patients.
www.lighthouse.org
Good site for those with sight problems
www.utmb.edu
University of Texas Medical Board site with details of research into the cause
of MG and other auto immune diseases.
http://jraworld.arthritisinsight.com/medical/meds/prednisone.html
good sites for details of prednisone treatment
http://www.revoptom.com/handbook/sect7c.htm
http://www.revoptom.com/handbook/SECT62a.HTM
Here is a site on Ocular Disease Management, the site deals with Ocular
Myasthenia, but down at the bottom there is a link for Graves.
Medline Plus, good site with plenty of MG info - requires Flash Player to
view tutorial..
http://www.esterneuro.com/
The company which is developing Monarsen, as a replacement for Mestinon.
National Institute of Arthritis and Musculoskeletal and
Skin Diseases
NIAMS/National Institutes of Health (NIH)
http://www.niams.nih.gov/hi/topics/autoimmune/autoimmunity.htm
If you have Myasthenia Gravis you may be eligible
to participate in a research study of an oral investigational medication that is
being conducted in your area.
To qualify, you must be 18-80 years of age, have a clinical diagnosis of
Myasthenia Gravis and take prednisone for at least 4 weeks before you begin the
study.
As a participant, you will receive study-related medication and care, lab tests
and physical exams all at no charge.
Call today if you would like to learn more about this study and find out if you
qualify for participation.
For more information, call:
In U.S.: 011 800 111 25252
In Canada, UK, Germany, Italy Spain and France: 00 800 111
Other Countries: Please Email
medinfo@aspreva.com
If you come across any sites which you think would be useful to your fellow list
members, drop us a line with the details and we will add it to the list
© Brian Houston 2002-2010 |