Myasthenia Gravis
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LINKS PAGE

 GENERAL SITES


www.beyondthelimits.net   Beyond the Limits of Myasthenia Gravis by Clete Gress.  It's an autobiography by Clete Gress telling of his struggle with Myasthenia Gravis and how he learned to go Beyond the Limits of the disease

http://www.angelfire.com/hero/heros/ 
We salute our heroes in the Gulf"

http://www.mgauk.org
The website of the Myasthenia Gravis Association for the UK.

http://www.myasthenia.org
The Myasthenia Gravis Foundation of America website

www.mgsouthyorks.org
Website for the myasthenic support group of South Yorkshire in England.

http://www.members.aol.com/jdjandsje2/dr_mary_walker/index.htm
Fascinating site covering the brilliant pioneering work of the Scots doctor Mary Walker. Well documented with lots of photos. This lady pioneered MG research as far back as the 1930's. A "MUST VISIT" site.

http://pages.prodigy.net/stanley.way/myasthenia/famous.htm
worth a visit, see that wealth and fame do not prevent you from having Myasthenia Gravis, see some of the famous myasthenics

http://www.nervecentre.org.uk
 A new website for those with Neurological illnesses in the North of Scotland

http://www.sleepnet.com
Sleep apnea is something suffered by many MG?ers, if you need any info, this is the site to visit.  There is even a test to give you a better idea whether you suffer or not.

 http://www.clams.org/goodocs.html
Although started by MS sufferers, this site gives list of Neuro?s in the US and Canada which are rated good by the patients themselves.  Check to see if they treat MG?ers.  A few of our members have found this site useful 

http://myasthenia.puhs.org/moshe/
Moshe Pick our friend from Israel has all his surveys posted here.

http://www.niams.nih.gov/hi/topics/autoimmune/autoimmunity.htm
Everything you ever wanted to know about auto-immune diseases.

http://myasthenia.puhs.org/mgdiag.html
Great site dealing with tests and diagnosis for Myasthenia Gravis and other
Auto-immune diseases
 




INFORMATION & TREATMENT SITES.

http://cpmcnet.columbia.edu/dept/surgery/Cardio/myasthenia.html
CPMC Thoracic Surgery: Myasthenia Gravis

http://www.mgauk.org/mganews/thymoma.htm
Nick Willcox: Thymoma and Myasthenia Gravis

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search&DB=PubMed
Pub Med - American National Library of Medicine - Great search facility for information about prescribed drugs.

http://pages.prodigy.net/stanley.way/myasthenia/mgtable.htm
BEST OF MYASTHENIA GRAVIS LINKS
A table containing links to cover everything from organisations world wide, Diagnosis, MG Articles, Specific Information about treatments, Drugs used to treat MG, Medical Information, Special Issues & lists of Worldwide Organisations for non-English speaking patients.

www.lighthouse.org
Good site for those with sight problems

 www.utmb.edu
University of Texas Medical Board site with details of research into the cause of MG and other auto immune diseases. 

http://jraworld.arthritisinsight.com/medical/meds/prednisone.html
good sites for details of prednisone treatment 

http://www.healthandage.com/html/res/com/ConsDrugs/Prednisonecd.html

http://www.revoptom.com/handbook/sect7c.htm

 http://www.revoptom.com/handbook/SECT62a.HTM
Here is a site on Ocular Disease Management, the site deals with Ocular
Myasthenia, but down at the bottom there is a link for Graves.

Medline Plus, good site with plenty of MG info - requires Flash Player to
view tutorial..

http://www.esterneuro.com/
The company which is developing Monarsen, as a replacement for Mestinon.
 

National Institute of Arthritis and Musculoskeletal and Skin Diseases
NIAMS/National Institutes of Health (NIH)
http://www.niams.nih.gov/hi/topics/autoimmune/autoimmunity.htm

If you have Myasthenia Gravis you may be eligible to participate in a research study of an oral investigational medication that is being conducted in your area.
To qualify, you must be 18-80 years of age, have a clinical diagnosis of Myasthenia Gravis and take prednisone for at least 4 weeks before you begin the study.
As a participant, you will receive study-related medication and care, lab tests and physical exams all at no charge.
Call today if you would like to learn more about this study and find out if you qualify for participation.
For more information, call:
In U.S.:  011 800 111 25252
In Canada, UK, Germany, Italy Spain and France:  00 800 111
Other Countries:  Please Email
medinfo@aspreva.com

 

If you come across any sites which you think would be useful to your fellow list members, drop us a line with the details and we will add it to the list

? Brian Houston 2002-2006