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LINKS PAGE
GENERAL SITES
www.beyondthelimits.net
Beyond the Limits of Myasthenia
Gravis by Clete Gress. It's an autobiography by Clete Gress
telling of his struggle with Myasthenia Gravis and how he learned to go
Beyond the Limits of the disease
http://www.angelfire.com/hero/heros/
We salute our heroes in the Gulf"
http://www.mgauk.org The website of the Myasthenia Gravis Association for the UK.
http://www.myasthenia.org The Myasthenia Gravis Foundation of America website
www.mgsouthyorks.org Website for the myasthenic support group of South Yorkshire in England.
http://www.members.aol.com/jdjandsje2/dr_mary_walker/index.htm Fascinating site covering the brilliant pioneering work of the Scots doctor
Mary Walker. Well documented with lots of photos. This lady pioneered MG
research as far back as the 1930's. A "MUST VISIT" site.
http://pages.prodigy.net/stanley.way/myasthenia/famous.htm worth a visit, see that wealth and fame do not prevent you from having
Myasthenia Gravis, see some of the famous myasthenics
http://www.nervecentre.org.uk A new website for those with Neurological illnesses in the North of
Scotland
http://www.sleepnet.com Sleep apnea is something suffered by many MG?ers, if you need any info, this
is the site to visit. There is even a test to give you a better idea
whether you suffer or not.
http://www.clams.org/goodocs.html Although started by MS sufferers, this site gives list of Neuro?s in the US
and Canada which are rated good by the patients themselves. Check to see if
they treat MG?ers. A few of our members have found this site useful
http://myasthenia.puhs.org/moshe/ Moshe Pick our friend from Israel has all his surveys posted here.
http://www.niams.nih.gov/hi/topics/autoimmune/autoimmunity.htm Everything you ever wanted to know about auto-immune diseases.
http://myasthenia.puhs.org/mgdiag.html Great site dealing with tests and diagnosis for Myasthenia Gravis and other
Auto-immune diseases

INFORMATION & TREATMENT SITES.
http://cpmcnet.columbia.edu/dept/surgery/Cardio/myasthenia.html CPMC Thoracic Surgery: Myasthenia Gravis
http://www.mgauk.org/mganews/thymoma.htm Nick Willcox: Thymoma and Myasthenia Gravis
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?CMD=search&DB=PubMed Pub Med - American National Library of Medicine - Great search facility for
information about prescribed drugs.
http://pages.prodigy.net/stanley.way/myasthenia/mgtable.htm BEST OF MYASTHENIA GRAVIS LINKS A table containing links to cover everything from organisations world wide,
Diagnosis, MG Articles, Specific Information about treatments, Drugs used to
treat MG, Medical Information, Special Issues & lists of Worldwide
Organisations for non-English speaking patients.
www.lighthouse.org Good site for those with sight problems
www.utmb.edu University of Texas Medical Board site with
details of research into the cause of MG and other auto immune diseases.
http://jraworld.arthritisinsight.com/medical/meds/prednisone.html good sites for details of prednisone treatment
http://www.healthandage.com/html/res/com/ConsDrugs/Prednisonecd.html
http://www.revoptom.com/handbook/sect7c.htm
http://www.revoptom.com/handbook/SECT62a.HTM Here is a site on Ocular Disease Management, the site deals with Ocular Myasthenia, but down at the bottom there is a link for Graves.
Medline Plus, good site with
plenty of MG info - requires Flash Player to view tutorial..
http://www.esterneuro.com/ The company which is developing Monarsen, as a replacement for Mestinon.
National Institute of Arthritis and Musculoskeletal and
Skin Diseases NIAMS/National Institutes of Health (NIH)
http://www.niams.nih.gov/hi/topics/autoimmune/autoimmunity.htm
If you have Myasthenia Gravis you may be eligible to participate in a
research study of an oral investigational medication that is being conducted
in your area. To qualify, you must be 18-80 years of age, have a clinical diagnosis of
Myasthenia Gravis and take prednisone for at least 4 weeks before you begin
the study. As a participant, you will receive study-related medication and care, lab
tests and physical exams all at no charge. Call today if you would like to learn more about this study and find out if
you qualify for participation. For more information, call: In U.S.: 011 800 111 25252 In Canada, UK, Germany, Italy Spain and France: 00 800 111 Other Countries: Please Email
medinfo@aspreva.com
If you come
across any sites which you think would be useful to your fellow list
members, drop us a line with the details and we will add it to the list
? Brian Houston 2002-2006
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