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Societies and Trusts

National Multiple Sclerosis Society

Multiple Sclerosis Society (UK)

MS Society (Scotland)

MS Trust

International Federation

The Myelin Project

The Myelin Project UK

MS Society of Australia

MS Society of New Zealand (Auckland)

Multiple Sclerosis Resource Centre

Accelerated Cure Project
 

Directories

Healing Well covers all manner of diseases, disorders and chronic illnesses including multiple sclerosis

Health cyclopedia is another comprehensive health directory with a section devoted to multiple sclerosis

Dynamic Directory Lots of good, interesting personal accounts, different ways of dealing with multiple sclerosis and just some good looking sites.

Diseases & Conditions A fairly comprehensive directory of many conditions including multiple sclerosis

 

Forums

MSRC Sharing hosted by the MS Resource Centre, a small but very friendly and helpful message board.

This Is MS is where the serious MSers hang out. OK they aren't all serious and there is still a bit of banter but a lot of in-depth looks ate treatments and medications.

Personal Pages

Ivonne's MS Homepage tells of the despair and fear upon being diagnosed with multiple sclerosis. Her story is about hope, courage and possibilities and a desire to share her experience with you. Don't worry if it appears to be in German, there is an English section.

Betty's House ... A Life After MS Betty Iams wishes to share her very positive experience of multiple sclerosis despite her fears and anxieties felt at diagnosis. She has developed a successful holistic management program which she hopes will be beneficial to all who visit.

Nancy Delise reports improving MS symptoms after her use of orally taken colloidal silver

Janie McDowell has tried a large number of treatments including chemotherapy! After much caution, and having the idea belittled by doctors and dentists alike, she had all her amalgam fillings removed and began a course of chelation. Read the outcome for yourself.

Donna Chandler discusses the most unusual, most unlikely and most unbelievable treatment for multiple sclerosis that I have heard yet. Not that I am a sceptic, even if it works I'm not sure I fancy trying it.

MS Rebel has lots of alternative treatments and lots of links to other sites.

Multiple Sclerosis Sucks injects a shot of humour into the arm of MS. Many may find the mixture of humour and MS to be unacceptable but many others, myself included, try to keep the spirits up any way we can.

Vixpix This is one for the gentlemen visitors. Alternatively titled 'Tits out for Multiple Sclerosis'. One lady's unique approach to fund-raising for MS. One can only say "very well done!" and very stimulating too! Not for the prudish or the young. This lady has a serious sense of humour, I like her already!

A Life After MS is Sylvie's story of her recuperative trips to Florida and her remarkable fund raising trips to Snowdon and her parachute jumps.

 

 

 

A first treatment might be bulk laxatives such as Metamucil alone or in combination with a stool softener such as Colace or Surfak. If these do not work, Milk of Magnesia, Dulcolax or several other agents may be prescribed. An enema may be needed to keep the constipation from causing serious damage.

Facial pain and other painful syndromes can be treated with anticonvulsive medications such as carbamazepine (Tegretol), phenytoin sodium (Dilantin) or Valproic Acid (Depakote). Elavil, originally manufactured as an antidepressant, also helps treat pain originating in the nervous system, as in multiple sclerosis.

As a last resort, if severe pain persists and interferes with such basic functions as speaking or chewing, some people may have a section of the nerve surgically removed or blocked. People who undergo this procedure will have numbness over part or much of the face.

A surgeon can first reversibly block the nerve to give the patient an idea of the numbness that will be produced. For some, the loss of feeling may be as disturbing as the pain they had before surgery.

Exercise can cause problems for people with multiple sclerosis because the resulting overheating can make neurological symptoms worse. But because cold temperatures increase the velocity of electrical impulses in nerves, which are slowed in multiple sclerosis, exercising in cold water may temporarily help relieve symptoms of multiple sclerosis.

The ability to dissipate heat in cold water, combined with the buoyancy that people have in water, allows patients to maintain fitness through swimming without suffering the side effects of overheating that they would experience if they exercised in more conventional ways.

In addition, an experimental drug, 4-aminopyridine, appears to increase the velocity of impulses in demyelinated nerves. This and/or related drugs are expected to become generally available to treat multiple sclerosis during the next few years.

Physical medicine and rehabilitation are important complements to drug therapy for multiple sclerosis. Physical therapists work with the patient on developing strength, coordination, balance, and stamina to perform activities without tiring.

Occupational therapists concentrate more on coping with daily living and have introduced several devices that help people function more easily, for example, with dressing and eating. One of the most useful innovations is the motor scooter, a vehicle that has allowed people to maintain their jobs long after they would have had to retire on disability.

The device is useful not only for people who can no longer walk, but also for ambulatory people who tire easily due to the disease.

In addition, vocational rehabilitation has taken on greater emphasis. People who can no longer physically perform their jobs can learn new skills in an increasing number of vocational programs, including many sponsored by local chapters of the Multiple Sclerosis Society.

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